In social networks, by email, on the street - every day I get questions and concerns from other people affected or their family members. You are desperately looking for answers, my opinion or an assessment and in order to be able to offer you an answer directly, we have now put together the most frequently asked questions for the editors.
The most common questions to me
- Where did you have the operation, how was it and are you satisfied with the result?
You can answer these questions this article read through. I wrote down most of what I still know.
- Do you have to adapt to compression for a lifetime or can you leave it out at some point?
You will have to find out for yourself. Every now and then I notice pain that makes me skeptical and I prefer to wear compressions to prevent the worst than let it come down to it. But some no longer need them. You will notice that. Just let it come your way and should it happen, keep your head up. There are worse things than that.
- What if I leave it off? Is the fat coming back?
Cells that are aspirated cannot come back. However, the remaining cells can continue to mutate. I am not a doctor who can explain this to you and unfortunately I have no long-term experience to report on.
- Did you have the feeling it was coming back?
No. My doctor explained to me that he cannot suction everything because anatomically it is not possible. Therefore I prepare myself for the fact that I will never be completely symptom-free. I have already heard whether it can go back to its original state through pregnancy or other hormone fluctuations. But it doesn't help to be afraid of it. My life is mine, my dreams are mine. Lipedema makes things harder for me, but it cannot take away my will to lead a good life.
- How did you lose weight
Balanced diet and exercise. Above all, you are allowed to eat enjoy. You just have to understand how the metabolism system works.
I have three articles for you: From eating more and losing weight, Lose weight with lipedema - 30 kg lighter, Sport with lipedema: from having to to want to.
- What experience do you have What worked
Eat. Just eat and write down calories. I use an app for this and that's the real deal for me. You need a sufficient amount of every substance for your body to function, including fat! Nutrition is a science and, like in sport, something different works for everyone (tolerances, etc.). Basically, please just eat healthy and balanced - the oldest rule! The fddb app also helps you to keep track of whether you are consuming enough fat. How many calories you can eat to lose weight, you can think about here calculate.
- And which sport can you recommend?
Everything that you enjoy and that really makes you sweat. Here we work off everything that could inspire you.
- How do you combine flat knitting in everyday life?
Do you have Instagram? We try to find inspiration every day. Otherwise we have Review article. Just don't worry too much about wearing compressions, see them as tights. For example, I love skirts and dresses, that works great with the KSH. And the Arm socks then just has to fit in with the rest.
Instagram: lipedema fashion
Instagram: Caroline Sprott
- Do companies like Medi send samples of compression stockings?
They do not send product samples to private individuals, but you can certainly browse through the samples in the medical supply store that Medi stocks.
Just have a look here, where there is one near you.
- Can you tell me what the differences between the manufacturers are?
I have already worn compression stockings from Juzo, Bauerfeind and Medi. Juzo is knitted a little softer and feels thinner and more flexible as a result. Medi, on the other hand, is firmer and perhaps a little more compressive, for my taste a little more durable, especially with the seams. Unfortunately, for me, Bauerfeind is the least compatible because the knitted fabric was too smooth on my skin. But in the end it is very much dependent on taste and experience. So if you are unsure, try one company first, then another company in six months and then decide which variant suits you best.
Ask me your questions
I hope these answers have helped you a little. If you have any questions, you can email them to me firstname.lastname@example.org . provide