I have seen many restorations since my diagnosis and am always keen to learn as much about lymphology and other sufferers as possible. This is how I met the feedback from a reader who feels very alone with her situation. There is a suitable compression supply for practically every part of the body, because even if lipedema theoretically only affects the extremities, lymphedema can develop almost anywhere. And so there is the compression facial care, which I am able to bring you closer to today.
One of our readers has bravely agreed to report anonymously about her facial care. If there is someone out there who shares their fate and wants to exchange ideas, they are very welcome to contact them via email (caroline@lipoedemmode.de) or via the Contact form turn to us and we will arrange everything else. I would be very happy if this would help me make contacts.
My second face
I have secondary lymphedema on the left side of my face. It was created through an ear operation. It took the doctors two years to make this diagnosis. Unfortunately, the edema presses on the trigeminal nerve causing pain. Tension, pressure and pain are my daily companions. In addition, my face is disfigured, swollen, etc. every day.
I have to wear a compression face mask, which is not always possible in everyday life. In addition, I tape my face and neck, which puts a lot of strain on and disfigured my skin - I am desperate. I get lymphatic drainage at home twice a week and look for someone who has experience in what can still be done. Unfortunately, I don't know anyone who has it on their face.
Professionally, I can't wear the mask, which doesn't make it easy, and I also take medication to endure the pain. I received a recommendation from rehab to submit an application Reduced earning capacity to ask, which burdens me a lot.
Alone with my compression face supply
I'm also currently looking for talk therapy to somehow deal with it, but unfortunately I'm on the waiting list. I feel so alone and would be happy to meet like-minded people, I haven't found anyone in self-help groups or in rehab.
Have it throughout my whole body including my face can't even find a doctor to help would love to talk to someone
Dear Opiela,
I'm very sorry to hear that. I'd like to help you out. Would you be so kind and tell, where you live? I'll see what I can do.
Caroline
I live in United States Low Indiana
Hello, I also wear one. You're not alone. Greetings from Björn
Dear Caroline!
I have lymphedema on both sides of my face and have been in terrible pain since January. Tension, pressure, stinging, burning. No doctor seems to know how to help me. It’s awful. Do you have a tip for me who I can turn to? Thank you and best regards, Dana
Hello Dana,
oh man, that doesn't sound good. And, where do you live?
Best regards,
Caroline