Lipedema, you scare me - life after liposuction

This article may seem unusual for me because I always try to keep my head up and make the best of my situation. But pain teaches you respect and in the acute moment has a power that you can hardly understand. And then it is there, this gloomy cloud that tries to stifle the painfully cherished glimmer of hope. This is my post-liposuction life.

I have lipedema, the lipedema doesn't have me. Not me. God, when does this effort stop ...

There it is again. My mantra that the years since my diagnosis have made me walk upright and that this time too I tried hard. But I feel exhaustion spreading Please not again, not this pain again.

Hello pain, old companion.

They are coming. With quiet steps and stalking steadily for a year. Pain as I know it all too well. Many months after my operation I was quiet, was even able to live without compression and was enjoying the break from lipedema. My life revolved around something other than this disease, which wanted to make my life hell from a young age.

But at some point I noticed a twinge, a harbinger that I could not be saved after all.

- Knock Knock.
- Who's there?
- Lippie ...
- Lippie-who?
- Lippie-fuckin 'edema. Did you miss me?

I know my body and haven't waited long for the new restoration. This result had to be preserved after the operation, by all means. But as you probably guessed it from this article, my fight is not won yet.

Déjà-vu: I thought that after the liposuction there would be peace

If I had one wish, I would wish that I could not return to the state before the surgery, please. I could no longer drive a car, because after 3/4 hour the journey usually had to be broken off. The same was true for the train and the pain to touch that followed me every step of the way in everyday life. I was 26 and watched the quality of my life deteriorate rapidly. Within five years the pain in my legs and arms should develop so dramatically that I no longer recognized myself.

Dear fairy godmother, I already know the dead end. Please take me somewhere else.

The pain has been increasing again for half a year and I recognize this speed again. And it feels threatening - lipedema, you scare me. I let you suck 12 liters out of my body. Tried to stop feeding you the best I could. Tried to treat your pain away for so many hours. And yet we are sitting here again, together on the train, together in the car, united at the concert, familiar after a hard day.

lipoedem fashion outfit rainy day yellow outfit yellow rain liposuction slimming fear

Lipedema, you are an uninvited guest

Rain is followed by sunshine. There it is again, my glimmer of hope. The spark that defiantly bares my teeth. We women are lionesses. We do not see it at all, to be surrounded by an underground demon and we will not surrender to him without a fight. Not with us, not with me.

This is my life and I only have one thing. You have no control over me. With or without liposuction.

Lipedema, you're an asshole and assholes have no future. Let's see who has the longer breath.

Cheer up you lionesses.

lipedema-fashion-outfit-purple caroline sprott

Author: Caroline Sprott

I'm Caroline, born in 1989 and live in Augsburg. Why did I start the lipedema fashion blog? At the beginning of my diagnosis I was completely helpless before an uncertain future. Now, a few years later, through active participation in self-help groups and a lot of research, I have accumulated a wealth of experience that I would like to make available to other affected persons in one place - without the detour via private groups on Facebook. The fashion component is of course due to my hobby. At the time, I promised myself that I would never be restricted by compression stockings. This attitude gives other patients courage and so Michaela advised me to start a blog.

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  • : - ((I recognize myself so much in this post <3 Thank you Caroline for being who you are. It's fun to read your blog and I find it an enrichment.
    Thank you
    hug yourself

  • Oh no - I'm so sorry. I've lived with pain for 30 years and it got worse and worse. I only had the diagnosis for 1 year. And for about 4 years I have had an extreme increase in pain and exhaustion. IM very desperate. Unfortunately, your story also shows that there is nothing that can permanently relieve this pain. I wish you that there is no further aggravation!

    Due to my pain and exhaustion and two other chronic illnesses, I currently have an objection to the determination of a GdB run. Unfortunately, lipedema is also ignored or not taken seriously by the reviewer. The compression (arms and legs) brings a certain limitation in life. May I ask if you have a GdB and how high it is?

    Kind regards, Michaela

      • Dear Caroline,

        I'm sorry to read this. I can understand the thoughts 1: 1. I haven't had an operation, but the limitations in the quality of life and the pain don't always make it easy to stay strong and positive. Thank you for being so transparent and open. May I ask indiscreetly whether the GdB of 40% was "only" awarded for lipedema? I will soon have an appointment with my company doctor because I am increasingly limited and hope to be relieved of a GdB and the additional payment. I very much hope that the pain doesn't get worse for you!

        • Hello Simone,

          No, I have additional restrictions apart from lipedema that played a role. But depending on the severity, lipedema can also contribute to the inability to walk and thus achieve a higher percentage.

          Best regards,

  • Dear Caroline,

    I feel so much for you right now! You have been a role model to me for a long time and I always follow your blog with excitement.
    We mustn't let ourselves get down and we keep fighting against it!

    Send you very warm greetings from Franconia

  • Dear Caroline, keep fighting bravely! A question at this point, have you - or anyone else here - heard of quadrivas therapy? A Dutch woman developed this, probably based on some Asian massage technique, and she claims that with regular applications over a year she can cure lipedema stage 1 + 2 (!) And can reduce stage 3 by up to 80%. I'll add a link, but if it's problematic, just delete it again:
    I would be interested to know what's behind it - it sounds too good to be true ...
    Be brave!

  • How would you describe your pain Like stabbing, pulling, throbbing? Sometimes I don't know whether the pain is caused by varicose veins or lipedema.

  • Carolin Your report touches me very much. I can understand it. The course is not so bad for me. I am 51 years old and my lipedema was diagnosed 5 years ago and has been treated since successful. Now I have my own lymphomat to purify the legs. I use lymphatic drainage for 8 hour every day and 1 minutes twice a week. I hope that the Lipposuctions will soon be taken over by the KK. THANK YOU for your blog. All the best, you are a great and strong woman

  • Hello, great written by you.
    I know that doesn't really help anymore ...
    a specialist once said to me that liposuction should only be done from the age of 28 and that planning for children should be completed ... probably all because of the hormones. Of course, no one can guarantee that it will come back. That's why I'm always thinking about whether you should really do the surgery ... on the other hand, you don't want to continue like this in the long run.

    • Thank you Simone!

      Glad I did them, but there are days when it's hard to keep your head up. It's all better than it was before the operations, but the threat doesn't go away until there's a cure. You always stay on guard.

      Best regards,

  • Thank you very much for this honest contribution!
    Everywhere you just read how great everything is after the operation and how well you feel afterwards. But it is just not curable, even if there are doctors who claim this. I'm so advanced now that I will need the surgery, but I know that it will only take away the pain for the time being and make me more flexible. Nothing more and for how long remains to be seen.
    I wish you will feel better soon!