LOPI - The survey portal for people with lipedema

Knowledge is power and the lipedema community is one of the most communicative I know. Hundreds of those affected exchange ideas every day, share experiences and ask questions. Unfortunately, these findings get lost in the comments and it is difficult to maintain an overview here.

 

LOPI stands for Lipedema Online Pring Iinitiative. The online survey portal offers an opportunity to collect and illustrate experiences and data from voluntarily affected persons. In this way new knowledge can be gained or assumptions can be substantiated. That means the more people get involved in this project, the clearer the results we will all get.

lipoedem mode lopi online questionnaire survey portal 1

How does LOPI work?

You register via the Registration Form to which you will be sent a code that you enter in every survey in order to be able to participate anonymously. Don't worry, your names and email addresses will be handled independently of this code.

The first basic questionnaire deals with the most important data about yourself, which is then incorporated into the database at the end and illustrated in diagrams. Only participants can see these results. The surveys should be limited to 1–2 per month, so you don't have to worry about receiving too many emails.

lipoedem mode lopi online questionnaire survey portal 1

We ask for ideas and requests for further surveys. So Sabrina (kontakt@lopi2017.de) likes to write if you have a burning issue. All participants vote on the next topic. These are already being planned:

  • Lipedema operations: yes or no? Where, who, why, costs, improvement
  • Lipedema and eating disorder
  • Lipedema and other diseases
  • Compression: what, how, where?
  • Lipedema over time

And also for that Privacy Policy is taken care of. Not only the little penguin (oh God, I think that's really cute) from the logo takes care of our data, they are not passed on to third parties and are strictly separated from personal data.

 

What are the benefits of the online panel?

The results of the surveys can help you make decisions, get information more quickly and lay the foundation for an important database. Only together are we strong and should use every opportunity to work for more answers, attention and progress.

lopi lipedema internet portal lipoedema lipoedem lipedema

Get involved, take the 10 minutes for the first questionnaire and take a look. If you like the portal, please recommend it to others!

You find LOPI Facebook and under www.lopi2017.de

Handwriting_caroline

 


lipoedem mode lopi online questionnaire survey portal sabrina picone

sabrina, the founder of the portal, has suffered from lipedema herself since puberty and has tried to collect as much knowledge as possible about this disease since her diagnosis. She works in market research and naturally brings the perfect wealth of experience for this initiative with her.

lipedema-fashion-outfit-purple caroline sprott

Author: Caroline Sprott

I'm Caroline, born in 1989 and live in Augsburg. Why did I start the lipedema fashion blog? At the beginning of my diagnosis I was completely helpless before an uncertain future. Now, a few years later, through active participation in self-help groups and a lot of research, I have accumulated a wealth of experience that I would like to make available to other affected persons in one place - without the detour via private groups on Facebook. The fashion component is of course due to my hobby. At the time, I promised myself that I would never be restricted by compression stockings. This attitude gives other patients courage and so Michaela advised me to start a blog.

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