Contraception: the pill and lipedema

Pill and lipedema

The pill has long since become fashionable and is nowadays already being prescribed to young teenagers as a preventive measure and almost for cosmetic use against pimples and for more beautiful hair. There is almost never any information about what it does to the body and what side effects it has. So let's speak plainly here.

With the birth control pill you take estrogen and progestin. The estrogen prevents ovulation and the progestin changes the mucus in the cervix. Even today's micropills with their smaller amounts of hormones still have side effects, and not too short. Intermenstrual bleeding, breast tenderness, nausea, mood swings and headaches are still the most harmless. The new generations of pills even contain that one and a half to twice as high risk of thrombosis and Pulmonary embolism. Cancers of the cervix occur more often than without taking the pill.

lipoedem fashion pill and contraception anti baby hormones pill and lipedema

What do the pill and lipedema have to do with each other?

Unfortunately, this disease has been shamefully too little researched, but it has been observed that the clinical picture is caused and made worse by hormonal changes or too much estrogen. And now you add one and one together. I know this method of birth control is the most convenient, but is it really worth it to you? Would you ingest something that you knowingly take at a higher risk of getting sick or sicker? Would you like your 12 year old daughter to take a drug like this just to reduce breakouts?

Please inform yourself in more detail under the following links and keep these thoughts in mind, share them with those around you and sensitize yourself to potential dangers that you could avoid.


My thoughts on the subject Pill and lipedema

"Never again the pill!" I said after I noticed that the lipedema worsened much more slowly after stopping it. And I realized what this little pill has really been doing to my body for the past 10 years.

Prescribing such a debilitating drug as candy, especially to minors, is irresponsible because the side effects are almost never explained.

Or would you just give your child a drug for years that dhe risk of thrombosis and embolism increased seven-fold? The risk of cancer increases. It is best to smoke while taking it.

And if you are unlucky you have a tendency to edema and may break it out by taking the additional hormonal load and changing it (similar to the outbreak during / after pregnancy, after / during menopause, etc.).

Please warn those around you about the risks, because I am sure that without the pill (and the additional excess weight) I would probably not have been so badly affected.


Find alternatives to hormonal contraception here in Tanja's article.

Take care of yourselves!

lipedema-fashion-outfit-purple caroline sprott

Author: Caroline Sprott

I'm Caroline, born in 1989 and live in Augsburg. Why did I start the lipedema fashion blog? At the beginning of my diagnosis I was completely helpless before an uncertain future. Now, a few years later, through active participation in self-help groups and a lot of research, I have accumulated a wealth of experience that I would like to make available to other affected persons in one place - without the detour via private groups on Facebook. The fashion component is of course due to my hobby. At the time, I promised myself that I would never be restricted by compression stockings. This attitude gives other patients courage and so Michaela advised me to start a blog.

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  • I stopped taking the pill overnight after 14 years, that was in October 2016.
    Best decision!
    Was prescribed for acne when I was 13.

    Struggling with pimples since January, but less than when I was young (and sometimes it was worse while taking the pill than now)
    Period quickly leveled off regularly.

    Last measurement of the legs - sometimes 3 cm less. It is certainly also due to our house renovation, but for me it is important that it has not gotten worse.

    I'm satisfied and often ask myself why I didn't do this before

  • I also took the pill for years and then had a three-month injection of the bigger bomb ... I can only warn everyone because these preparations have caused innumerable health problems, including my lipedema

  • Well, you can't lump every pill or every hormone-containing method of contraception with the same brush. I suffer from a strong hormonal change in the cycle (without taking any preparations), which also has a negative effect on my lipedema. Since I got an estrogen-free !! I have an IUD (only progestin), an improvement can be observed, I was able to lose a lot of the thighs and have significantly fewer problems with my legs. I think that every person affected simply has to find out for themselves what helps with them.
    However, I have to admit that when I was on the normal pill "back then" in my mid-20s, there were more side effects than I would have liked, including monthly bladder infections or fungal infections ... Fortunately, I don't have that either.

  • I have to say that I have had different experiences.
    My lipedema started during puberty. Then at some point I took the pill.
    Suddenly I lost 10 kg. It was a, at that time, very modern new pill, which was also very expensive. When I changed gynecologists years later because of moving, he preferred to prescribe me a cheaper pill because he said that it wasn't necessary to spend so much money on it. I was reluctant to switch, as I was always very satisfied, but tried it out. suddenly I gained 10 kg. 10 kg within 4 weeks. At first I didn't even think about the new pill. By the way, I didn't know anything about my lipedema for a long time. My mother then gave me the idea that it could be due to the different composition of the pill and so I switched back to my old, expensive pill. It took a while for the hormones to change again, but I lost the 10kg again, just like that. On the legs.
    A few years later, after getting married, I wanted to have children. So stopped taking the pill. 4 weeks later and 10 kg heavier, I know very clearly that stopping the pill will definitely give my lipoids a boost. I would like to say that I am more of a slim lipedema patient.
    For me it is very clear: there are pills that improve lipedema and there are pills that make it worse.

    • Hallo,
      thank you for sharing your experience. I've been on the pill for 10 years. When I was 16 and at normal weight I started taking the Yasmina (micropill, as described above with estrogen and progestin). For a few years it went well: no change. After the end of my first great love, I fed myself 10 kg of bacon (still normal weight). So I can't really blame the pill: I was the only one to gain weight. The weight then went up and down a few kg for me, always along the upper BMI of the normal weight. Only then did the lipedema really show itself in me.
      Every woman in my family has lipedema and I am the only one who takes the pill. My lipedema is no worse than my family's (although it should be noted that they are all significantly overweight).
      I was sensitized early on, which is why I was always aware of which body changes speak for the diagnosis of lipedema. Since my diagnosis by the phlebologist, I have changed the pill to Jubrele on the advice of my gynecologist (contains only desogestrel). He said there are signs in research that the ratio of the body's own estrogens to the progestins (to which desogestrel belongs) have an influence on lipedema. It is true that the estrogen is to blame for the misery; However, it makes a difference whether I add additional estrogen to the body or whether I add progestins. In addition, there is a difference in the choice for or against the pill, whether you tend to have strong hormone fluctuations. The pill can dampen the fluctuations here.
      Personally, I have always been cautious and have always observed my body behavior carefully in the 10 years for the purpose of side effects. I also believe that the pill is sometimes prescribed too lightly. It is and remains a drug. However, I find the stamping as a practical acne remedy not exactly sensitive. I'm 26 and I still really have bad acne that makes my face look like I walked over it with the coarse sandpaper. Only the pill can keep this acne in check. Without the pill my face is - without exaggeration - disfigured.
      In 10 years I could not find a causal connection between lipedema and the pill (whether Jubrele or Yasmina), which is why I keep taking it. Now that doesn't mean it doesn't exist in general. After all, as a precaution, I changed the pill. And I'll stop taking the pill as soon as my acne situation allows. I just mean that every woman is different and not everything can be lumped together. It is generally good to warn about this and to observe the symptoms and behavior of your own body.

      What really excites me: the risk of thrombosis from taking pills has been researched to the extent that it is on every package insert. The hormonal influences of lipedema have only been sparsely researched. A warning on the instruction leaflet belongs here! Could hormonal therapy for lipedema be an option in the future? Who knows? It is likely that lipedema treatment is still being labeled as not important enough or profitable enough ?! I can only guess… I'm glad my gynecologist recognized the risks and prescribed a different pill. In the meantime I am a little appalled that I was prescribed Yasmina (by another gynecologist) without asking about lipedema in the family. At the time I did not yet know the context, but I could have answered correctly.

  • My mother already had lipedema and did so without a pill. I have lipedema and I can tell from experience across all phases of life that as long as I took the pill, the deposits were within fixed limits. The long time without a pill after my pregnancies were also without effect. But when I went through menopause and got cysts and bleeding all the time, either hormones or uterus was the choice. I took the pill and everything calmed down, when I stopped taking it my weight exploded suddenly. I think the hormones would have been good for me and now that they are gone I am facing excessive fat accumulation, just like my mother did. In my opinion, lipedema can be combated with hormones!

  • Huhu,
    I'm Pauline, 16 years old and have been suffering from lipedema for a few years.
    I only got the diagnosis at the beginning of the year, but before I and the doctor were aware that I suffered from it, well, I first needed a little time to process that, since the beginning of the year I have also been wearing the compression.
    I also know that the pill played or even still plays a major role for me.
    I started taking them when I was 14 years old (minipill, Desirett).
    I am only allowed to take this pill because the risk of thrombosis in the family is very high. My aunt died a few years ago of a pulmonary embolism, probably also caused by the pill.
    I still take the pill myself.
    But not for any beauty reasons, I not only have endless pain without it, but migraine attacks, diarrhea and folicle cysts plague myself without them. My father used to have to pick me up from school because I was usually crying in pain and could hardly sit smoothly.
    Then a year ago the ruptured follicle cyst, with emergency surgery.
    I made a conscious decision to take the pill and have been complaining for a long time.
    Even if this triggered my weight gain of almost 20kg and maybe even partly the reason for my lipedema, I don't want to stop it anymore.
    At the moment I just can't imagine the pain without the pill and then the pain of lipedema, that would be just too much.
    LG Pauline