For a few days I have had a topic that was really stressful for me and that is only really coming to me now, three years later.
On the one hand, because I have been receiving psychological care for a year and have moved a little closer to myself. On the other hand, because I am becoming more aware of various aspects of our disease in the course of all the information.
Before I was diagnosed, I was in a state of intense pain that was omnipresent for many years. I suffered, could barely manage my daily workload, and in the evenings, total exhaustion caught up with me.
And then there was only one “solution”: Pain relieving medication!
Are pain medication really the solution for lipedema?
Every affected woman will surely have her own experience in this topic - I would like to tell you about my experiences.
Before the diagnosis, pain in the legs and arms, the feeling of heaviness, pressure pain, pain to touch, but also exhaustion and listlessness were the order of the day. And unfortunately the condition gradually worsened over the years. The lipedema exploded with two pregnancies. Unfortunately, at that point in time I didn't know that the disease even existed.
Ibuprofen came with me. To make up for my work day, I took pain medication. In order to have enough strength for invitations in the evening so that I could continue to participate in social life, I took pain medication. Before going on excursions or bike rides, I took pain medication. To cope with my workload on the farm, I took pain medication.
A memory that makes me sad.
The diagnosis in spring 2016 changed a lot in my head.
I became aware that the pain medication for lipedema did not take the pain away, but only relieved the pain and thus freed up so much energy and strength to continue my daily routine.
I had to start rethinking. I have learned to tolerate painful states to a certain extent and the diagnosis and the associated symptoms have given me the strength to see my life from a different perspective.
There is now a medically prescribed medication on demand. My professional situation is adapted to my capabilities. The conservative and later also operative therapy gave me some strength back.
I stopped fighting my body! I have adapted my everyday life, my approach to life, my professional situation, my private activities to my performance and no longer forced my body to continue functioning.
I have become more spontaneous, but also more cautious, and I have learned to say “no” without having a guilty conscience, sad feelings and heading for an emotional low.
So dealing with the disease is the solution!
It wasn't the pain medication for lipedema that helped me, but my new path based on the diagnosis.
I use good days, I feel powerful and could uproot trees, on bad days I brake and allow them.
Have you had similar experiences?
A very sensitive topic, but how do you deal with painful states? Do you need painkillers for lipedema? Have you found other ways and means to combine everyday life and pain? Do you know the guilty conscience when appointments have to be canceled because you just can't make it? Do you know the fear of not doing your children justice?
Sometimes other illnesses make the way more difficult. We all often have to be very brave, be careful with yourself and your body. Feed your soul every now and then with good thoughts!
All the best - your Judith