Talk about lipedema. Many of us have lipedema and most of the time do not know it. Unfortunately, this disease is hardly known, many doctors are overwhelmed. If so, the diagnosis is only made in passing. Enlightenment? A foreign word. You really feel left alone with this disease.
Taking the first steps is difficult, especially when you hear that it is incurable. What all goes through your head. It's like a loud bang that leaves you stunned and not sure what to do. Either you find the right path and move into the light or you remain motionless.
Share your thoughts with others. A good friend, a good friend, a family member. Talk about how afraid you are that it will get worse. About how it feels. How strange you feel in your own body. Sometimes the people around us are not even aware of how much this disease affects us physically, but especially mentally. We try to cover up our sadness with a smile or a casual saying. But that won't work forever.
Talk about lipedema
Seek help from those who are dear to you and you will quickly find that it helps immensely. When others know what moves you, they will also be more attentive to you. We are not obliged to tell our employer what diseases we suffer from; I myself have found that my boss really showed understanding. If you trust enough and have a close relationship, speak up.
We can only try to make this disease more public - we should talk openly about lipedema. In this way, more women will find out about this disease and present themselves to the doctor.
It's a little vicious circle
Diagnosis of lipedema - we are ashamed - do not talk about it - are labeled as "fat" - we are even more ashamed - we hide.
But it could also be very different:
Diagnosis of lipedema - we are ashamed - we talk about it - we are understood - we feel caught - we are integrated.
That would of course only show the ideal case, but I still find it much more positive! We should talk about our problems in general, but that seems really difficult sometimes in our society. I would like to ask you to give it a try ... of course there are people who will fail you. But don't let that stop you! We have to move something ourselves, otherwise nothing will move ... Yes, the sentence is copied - but it fits so nicely 😉
So in the sense - on a word!